What's new in my world today? Some rather sad news was received in the Wager household today. A fine Beech tree that grows in my back garden is having to be felled. The local birds will be disappointed as will the bat population that visit it at dusk in the summer months to feed on the myriad of insects that buzz around it. I am very sad that a mature tree has to be chopped down because it has literally outgrown it's surroundings and is now causing imminent danger to the park opposite. I have to admit it is leaning at a strange angle for a tree and a decent storm could see it uproot itself. The tree man is coming next week - I will keep you posted with my tree saga!
On a more serious note - please take the time to fill in the Welsh Assembly Government's consultation doc and write a letter voicing your support for the Opt Out System for Organ Transplantation. The documents are available to download from the Welsh Assembly Web page or from the Kidney Wales website. If you want any more information on the Opt Out System or how you can support Organ Transplantation please email me on mel@kidneywales.com
Friday, 19 June 2009
Thursday, 18 June 2009
Once again I am trying to keep a diary of life on dialysis. I say trying because I am hopeless at keeping any form of diary. I have tried to keep a diary every January for the past 20 years! I usually make it to about January 10th and then can’t find anything to write or have lots to say and don’t have the time to sit down and write it.
One of the main problems of writing a diary of dialysis is it ends up sounding as if I am having one long moan about my life. This is far from the truth, if I write down exactly what goes on when you are living with kidney failure I am not moaning; I am just trying to be honest.
I can honestly say that I believe that my life is as good if not better than a lot of people who are perfectly healthy. OK I have to watch my diet and stick to a 500ml fluid restriction daily but I also live every day to the full or try to. I don’t take things for granted as some people might and say thank you for each and every day that I continue to do well on dialysis. I know that I am the only one who can help keep myself well. By watching my fluid intake, diet and ensuring I do my full dialysis time I can keep myself as well as I can be.
I don’t want to gloss over the down side of dialysis and there are days when I feel really awful. So I will try to be as accurate as possible about life on dialysis and the waiting game for a transplant.
One of the main problems of writing a diary of dialysis is it ends up sounding as if I am having one long moan about my life. This is far from the truth, if I write down exactly what goes on when you are living with kidney failure I am not moaning; I am just trying to be honest.
I can honestly say that I believe that my life is as good if not better than a lot of people who are perfectly healthy. OK I have to watch my diet and stick to a 500ml fluid restriction daily but I also live every day to the full or try to. I don’t take things for granted as some people might and say thank you for each and every day that I continue to do well on dialysis. I know that I am the only one who can help keep myself well. By watching my fluid intake, diet and ensuring I do my full dialysis time I can keep myself as well as I can be.
I don’t want to gloss over the down side of dialysis and there are days when I feel really awful. So I will try to be as accurate as possible about life on dialysis and the waiting game for a transplant.
Monday, 22 September 2008
Can't say that there is an awful lot happening today except for the fact my memory is getting much much worse, is it age or a side effect of dialysis? I a hoping that it is a side effect of dialysis because the last thing I want to admit to is getting old! When I realised that I w0uod be 40 next birthday I didn't know whether to cry or cheer. After all aking it to 40 is some achievement after all I have been through this year but the vane part of me would rather I could turn back time and relive my 30's again. 30 seemed to be the age where I was wise enough to avoid all the pitfalls but parts of my body still pointed north! Why is it the older and wiser you get the less the opposite sex seem to take any notice of you.
And once again we are on a dialysis day so later on I will be spending another mind numbing 4 hours hooked up to that noisy thing, I swear I will go deaf before i finish dialysis and I wou't just need a kidney transplant I'll need a hearing aid.
And once again we are on a dialysis day so later on I will be spending another mind numbing 4 hours hooked up to that noisy thing, I swear I will go deaf before i finish dialysis and I wou't just need a kidney transplant I'll need a hearing aid.
Sunday, 21 September 2008
I am well and truly bored, once again I can not sleep, I wonder if other dialysis patients suffer from unsomnia. However the first question the doc asks you "Why do you think you can't sleep?" I DONT KNOW, I JUST CAN'T. I mean I have tries everything under the sun drawing the line as sleeping tablets but even those I have has for 3 days ans I must addmit I slept the sleep of the dead/ Please if anyothe reanl patients have any ideas, please pass themon, I'll ry anythinjbut I draw the line at codliver oli and tripe! Otherwise all sujjestiomswelcom.
Thursday, 18 September 2008
It sometimes seems as if dialysis days come around quicker and quicker. Yet another 4 hour session which is particularly annoying today because the sun is shining and it is a glorious autumn day. It would be a wonderful day to go out and sit outside in a restaurant o pub and have a few drinks - I can dream can't I?
Nick is training to run the Cardiff half marathon in a month so anyone reading this please sponsor him on the just giving link, he is running for Kidney Wales as usual.
Better go as the machine is calling my name!
Nick is training to run the Cardiff half marathon in a month so anyone reading this please sponsor him on the just giving link, he is running for Kidney Wales as usual.
Better go as the machine is calling my name!
Well, I am back - still alive and still kicking! Seriously though, I have recovered well from the car crash I had in March and luckily I am no longer undergoing physio. It was a hard slog to get mobile again after I was sent home from the hospital and it took the services of a fantastic physio called Bob Jones to get my leg bending as normal and me walking with crutches at first then two sticks and now, on a good day, just one stick. My metal work (arm, hand, elbow, knee and thigh) still gives me a bit of jip but on the whole I can't complain. The fact that I survived the wreck that was my car makes me certain that it just wasn't my time yet however I think I have now used a few of my nine lives!
Dialysis is still as boring as ever and I have to admit I would dearly love to be able to forget about my routine for a week or two, take a break from dialysis. This is not an option so it is a case of making the most of an annoying situation and trying to make the most of the time I spend on the machine. It is pointless getting angry or upset about dialysis, I would rather expend my energy on something I can change or at least something I can do something about. As the Serenity Prayer by Reinhold Niebuhr states; God grant me the serenity to accept the things I cannot change; the courage to change the things I can; and the wisdom to know the difference.
I want to be that wise.
Dialysis is still as boring as ever and I have to admit I would dearly love to be able to forget about my routine for a week or two, take a break from dialysis. This is not an option so it is a case of making the most of an annoying situation and trying to make the most of the time I spend on the machine. It is pointless getting angry or upset about dialysis, I would rather expend my energy on something I can change or at least something I can do something about. As the Serenity Prayer by Reinhold Niebuhr states; God grant me the serenity to accept the things I cannot change; the courage to change the things I can; and the wisdom to know the difference.
I want to be that wise.
Wednesday, 9 April 2008
Hello Again
Hello again, my recovery is continuing and I have been able to get out of bed and move around using a modified Zimmer frame. I am lucky enough to have had lots of visitors and cards from people wishing me a speedy recovery. I am hoping to be out of hospital in three weeks at the latest but I do not know if this is just wishful thinking.
Dialysis is going well after doing several extra shifts to get rid of the excess fluid I had on me because of the operations I received. The only thing does not change is the boring nature of sitting on a dialysis machine for four hours.
Dialysis is going well after doing several extra shifts to get rid of the excess fluid I had on me because of the operations I received. The only thing does not change is the boring nature of sitting on a dialysis machine for four hours.
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