Wednesday 6 February 2008

Back at last

Apologies for being away from the blog for such a long time, there is no single reason for this but a whole raft of conflicts that have joined together. I have been writing to Nick every night which has given me a chance to put my feelings on paper and so I have not felt the urge or requirement to vent my feelings here, if that makes sense? I hope it does.
I attended a meeting at the Assembly buildings Tuesday and it was extremely informative amd good to know that the issues surrounding and affecting renal services in Wales are taken seriously by the politicians in the Welsh Assembly however there is a big BUT; we need more AM's involved in the campaign to improve renal services and transplant rates in Wales. What can we do as individuals that's easily answered: Lobby your own AM's, write to them, ask to meet them and if they fail to relpy to your requests continue to write until they do. Politicians are there to serve us the public, they are paid out of the public purse. We as renal patients are the public, we are the people who voted our political representatives into office. Never forget this fact.
Ok rant over.
What did become clear to me was the need for a public education programme to make people fully aware of the issue of the opt out scheme (more commonly called the presumed consent system) I personally believe calling it presumed consent is a missnomer and gives people a false idea of the whole idea, hence the need for public education.